After my hysterectomy in 2015 I was put on hormone supplements to stave off the menopause my body dived into. Undergoing the menopause have a bunch of different effects that are rated acceptable for women around 45-50 years, but not for someone who (then) had barely passed 30. But once everything was removed, my body responded with sending me head first into perimenopause. I had huge problems with hot flashes and heavy sweating, not to forget how my mood were affected by my hormones going bananas. I was given hormone patches with a high dose of estradiol to help me with the effects of the menopause and it have worked flawlessly.
But while the patches works just fine, actually getting hold of them is getting harder and harder. Every drug store in the entire country are having issues getting the patches delivered to them by some reason, something about the producing company having issues getting hold of the active substance. This isn’t something new, it began two or three months after I first was put on them back in 2015, but everyone was so sure it was a passing problem. Two years later I’m feeling sick and tired of having to travel far and wide and spend loads of time in telephone lines trying to reserve that last box of patches long enough for me to hurry to whatever other county happen to have some in stock this quarter.
My case though, is odd and sensitive, the outcomes of bad advice can have life threatening outcomes. Most doctors I’ve met have handed me off like I was a hot potato. Luckily, I have two very dependant individuals I can contact whenever I need advice. The first is a gene researcher at Karolinska University Hospital. She works with mapping and overseeing the families with the HNPCC-gene in addition to her research. Professionals who have questions about treatment for families like mine can contact her. The second is the gynecological surgeon who performed the hysterectomy on me. At our first meeting she admitted to volunteering to take my case when the hospital board discussed my case because it was something she had never seen in her career. She had already contacted the geneticists at Karolinska, read through my file several times, done her own research on my condition and consulted several other doctors who where specialized in the types of cancer I can get to decide what would be the best course of actions for me. As you might guess, I instantly took a liking this woman.
So when I called the surgeons office today I felt calm and convinced they would think of a solution to this patch-problem. The nurse who answered the phone became outraged that there was still problems with the patches and promised to get back to me asap. A few hours later I got a call back with instructions on a new prescription. It’ll be a gel based supplement that I’ll spread on one of my thighs every day. I’m guessing this is something new in Sweden (or seldom used) as neither the nurse nor the staff at the drug store could exactly tell me what’s going to happen with my body once I switch out the patches to this gel thing. I went to the MPA’s webpage but while they have general information, there’s nothing tied specifically to anything I can relate to. But helpful as ever, the nurse booked me in for a phone consult with the doctor in a few days so I can ask her directly instead.